Hi guys! I’m so excited about today’s post, because I actually didn’t write it (except this introduction)! As you can see from the title at the top, this is my first ever guest post for BookLoversBlog, a super exciting step for me and one that I hope can continue because I love getting to connect with other bloggers and writers and have them share their experiences, there is such a wide world of writers out there with different experiences to mine and I want to make sure that is reflected in this feature.
Which brings me quite nicely onto today’s topic. Madeline Dyer is a YA writer, who has several chronic illnesses, so when she suggested writing a guest post about her experiences of writing with chronic illness, I thought it was a great idea. I hope that any of my followers who are also writers with chronic illness find her advice helpful! So here we go, I hope you enjoy Madeline’s post:
Being a Writer When You’re Chronically Ill
Ask any writer, and he or she will tell you there are many articles and videos out there, advising us on what we need to do to be a writer. There are checklists you can tick off, schedules you can use to divide up your writing and editing time, and many top tips that other writers swear by. The most popular pieces of advice, in my experience, seem to be ‘write every day’ and ‘treat writing as a job’, as well as ‘don’t give up your day-job’—but when you’re also dealing with a chronic illness, a lot of these tips either don’t apply to your situation or they make you feel like you’re failing because you physically can’t meet the expectations that these articles put on you.
Reading all these articles and lists made me feel as if I could never be considered a proper writer because there were many things on them that I simply couldn’t do as I am chronically ill. The fact of the matter is much of the advice out there assumes that you’re able-bodied and in good health, and when you’re not, it can feel a little bit lonely and discouraging. And, so, I was inspired to write this post, for all the writers out there who are also managing a chronic illness.
Here are my top pieces of advice regarding how to be a writer when you’re chronically ill:
Don’t be hard on yourself if you can’t write every day.
This is the big one, in my opinion. It’s so easy to think that you should be writing at every available opportunity and thus feel like a failure if you haven’t written that day (or week, or month, etc.). But if you’re having a bad time with your illness and you need to rest, then that’s what you need to do: rest. Don’t push yourself and use up that all-important energy. Your health has to come first, and there’s nothing for you to feel bad about for taking a rest-day instead of working on that manuscript. After all, if you push and push yourself, it’ll take longer to recover and you’ll end up writing less overall.
It’s okay not to write.
Similarly, if you’re not well enough to write at all for a period of time, that’s okay. It doesn’t make you any less of a writer. You are still a writer.
Set Manageable Goals.
On the days when you are well enough to write, set realistic goals that you know you can meet without making your health worse. Before I became chronically ill, I could easily write 5,000 words a day, and often it was closer to 7,000. That was the pace at which I wrote, and I’d feel like I hadn’t done enough if I’d only written 3,000 words.
When I developed chronic illnesses and was diagnosed with ‘invisible’ disabilities and auto-immune disorders, I simply could not keep up that pace without making my health suffer a lot. It was soul-crushing at first, as I could remember how easily I used to write so many words before. I felt like a failure in the one thing (writing) that I thought I could still do (I’d already had to give up many hobbies and activities). But the problem was that I was using my previous goals as a measure of my current success, even though before I was healthy and now I am not. Those word count goals were set before—before the fatigue and the fainting, the brain fog and chronic pain, the headaches and joint dislocations.
I struggle with maintaining an upright posture now, due to dysautonomia, and my fatigue and joint-pain from Ehlers-Danlos Syndrome make writing really difficult. Because of these factors, I’ve had to make my goals more manageable. On my good days, I now aim for around 500-1,000 words, and I know that realistically I’ll only manage this a couple of days a week—and that’s if the week is a good week. Many weeks, I’m unable to write at all, and even on my good days, I can’t go on writing for hours on end, like I used to.
The important thing here is acknowledging that your goals have to change to reflect your health. If you don’t change them, not only will you risk harming yourself by pushing yourself too far, but you’ll also feel terrible when you fail to meet your unreasonably-high expectations.
Physically, I’m not expected to do all the things I used to do—for example, doctors have said that horse-riding and athletics are too dangerous for me now—so it’s important to realise that we can’t be expected to write at the same speed as before too. Chronic illness isn’t something that only affects one part of your life; it affects everything, and adjustments have to be made everywhere.
Let others know what you’re dealing with, where possible. Especially those you work with, such as critique partners and editors.
If you’ve been given a tight deadline that you know is going to be difficult to make, then talk to the other people involved. Let them know you have a chronic illness. Don’t be afraid to talk about it. I’m a firm believer that it’s best to be upfront right from the start about having an illness or condition that could affect your work, so that others don’t place unreasonable expectations on you and so adjustments can be made if needed.
Don’t compare yourself to other writers
This applies to healthy writers too. It’s never wise to compare yourself or the state of your career to that of another. It’s just not a good idea. And it’s especially not a good idea to compare your career to that of an author who’s just completed four book tours, had two books launch this year, and is appearing at all the big cons, if you’re unable to do these things—either at all or at that pace—due to factors which are out of your control.
Whatever you’re managing to do for your writing career, whether it’s writing a paragraph or reading through an edit letter is a huge achievement when you’re managing chronic illness, and I feel like we need to celebrate these things more. So be proud of what you can do despite being chronically ill, and know that your worth isn’t dependent on your productivity.
Know that you’re not alone.
There are many other writers out there who are dealing with chronic illness too, and often just finding them and talking with them can help immensely. It’s certainly helped me feel less lonely, and I’ve been able to swap illness-specific tips with many writers who are also facing similar challenges.
Madeline Dyer lives on a farm in the southwest of England, where she hangs out with her Shetland ponies and writes young adult books—sometimes, at the same time. She holds a BA Honors degree in English from the University of Exeter, and several presses have published her fiction. Madeline has a strong love for anything dystopian, ghostly, or paranormal, and she can frequently be found exploring wild places. At least one notebook is known to follow her wherever she goes.
Discover Madeline’s books at http://madelinedyer.co.uk/fiction/
I hope you all enjoyed Madeline’s post, and if you are a writer, I am looking for more guest posts for this feature, so please get in touch with me via email, email@example.com or Twitter, @iloveheartlandX, if you have an idea that you would like to write about, I want to hear it! The sky’s the limit, you can talk about your books/WIPs, your writing process, things that affect your writing life, basically anything you want.
I’m going to have a new review up for you tomorrow, it’s finally time to share my review of Firestarter, the last book in the Timekeeper trilogy, as its release date is on Tuesday, so I’m super excited for that. I will also have a new Top Ten Tuesday up on Tuesday, so lots to look forward to in the coming week. As for this feature, I’m hoping to have a post up about how writing for different platforms helps improve my writing before the end of the month, so stay tuned for all of that!